For years, people with developmental disabilities and their families told us Ohio's DD waiver waiting list was complex, confusing, and needed to be simpler. That's why, over a 22-month period, our coalition spent hundreds of hours coming up with a new waiver waiting list process that is easier to understand, more transparent, and better able to meet the needs of those waiting for services.
Along with the input from people with developmental disabilities and their families, the coalition used multiple resources to inform the new operation of the DD waiver waiting list: What Are We Waiting For?; Waiting List for Medicaid Waiver Programs; and the Waiting List Improvement Survey.
Many opportunities were provided for public feedback throughout the process including presentations to people with developmental disabilities, their families and professionals. Feedback was gathered at multiple points in the rule making process such as a state public hearing where multiple families and organizations provided their testimony to the state.
What Are We Waiting For?
In 2014, the Ohio Colleges of Medicine Government Resource Center under sponsorship of the Ohio Developmental Disabilities Council examined Ohio's waiting list and produced a study which included the results of their extensive research. This study was the first of its kind in Ohio and has been used to inform our decisions as we Fix The List.
Waiting Lists for Medicaid Waiver Programs
In 2017, the National Association of State Directors of Developmental Disability Services produced a report based on their findings from an environmental scan of Ohio's waiting list management process. This report prompted important discussion and has been used as a valuable resource as we have worked to
Fix The List.
Waiting List Improvement Survey
In 2017, we sent a survey to people with developmental disabilities and their families to provide their direct feedback on what parts of the current waiting list is valuable to them and what would make the waiting list work better to meet their needs in the future. With 651 responses, this survey has prominently incorporated the voices of the people who currently use or will be using Ohio's waiting list into the process as we Fix The List.
Testimony was provided in a state public hearing on May 3, 2018 by multiple families and organizations. Read the testimony provided along with the complete hearing summary.